Social Distancing when you have a new baby

SOCIAL DISTANCING DURING THE POSTPARTUM PERIOD

If you have just had a new baby, HUGE congratulations to you and your partner / family! I’m sure you are relieved to finally have your baby in your arms. But what now? In these uncertain times and circumstances we all find ourselves in due to Covid19, we must now keep our distance from the usual people who help us navigate through the early days and weeks of motherhood, notably our own mothers, close relatives, friends and maybe even a Postpartum Doula. 

Although it might all seem a very overwhelming and anxious time, being forced to slow down and stay at home could also be looked at as a favourable thing in the early days and weeks after giving birth. Hopefully, your partner or support person will be able to help out as much as possible with the household chores, perhaps caring for older children but also looking after you so that you can concentrate on recovering after pregnancy and birth and minding your new baby.

I know it’s not the same as in person but you can still reach out to family and friends by phone, Skype, FaceTime, etc and they can still help out by delivering meals or groceries to your front door.

If you are breastfeeding, the latest scientific information encourages mums to keep breastfeeding as it provides your baby with protection against many illnesses.  https://www.breastfeeding.asn.au/bfinfo/covid-19?fbclid=IwAR09GhJRhdzdKQJ3KeJSXho2iZtVGYvzy6TSH5oE4vU5Sj7jdxs00PQcdCM

If you are struggling with breastfeeding or didn’t breastfeed during the first few days and would like to start now, contact a Lactation Consultant or a local breastfeeding support group, such as Cuidiu or La Leche League. They would be more than glad to help answer any of your breastfeeding questions or concerns.

Doulacare Ireland Postpartum Doulas offer online support (via video call) if you have any questions about such things as baby comfort measures, infant feeding, postnatal recovery or would like to debrief after labour and birth. DoulaCare Ireland have over 40 doulas to support you so please get in touch if you need to.

Please reach out for help if you are feeling very anxious or low. Organisations such as Nurture Health specialise in pregnancy and postpartum mental health and will do phone counselling support. Depending on your policy, some health insurance companies will cover a number of sessions so make sure to check your policy beforehand. Also if you have the GentleBirth app, there are some postnatal tracks which some mums finds really helpful if they are not feeling well.

There are some good tips in our Fourth Trimester blog also https://www.doulacare.ie/blog/2018/7/25/what-is-the-fourth-trimester

There is also lots of online support available so try to avail of as much of that as possible too:

DoulaCare Ireland: https://www.doulacare.ie/

Breastfeeding Supports:

Association of Lactation Consultants Ireland http://www.alcireland.ie/find-a-consultant/ 

Cuidiu, Irish Childbirth Trust http://www.cuidiu-ict.ie/supports_breastfeeding_counsellors

Le Leche League Ireland https://www.lalecheleagueireland.com/groups/

Friends of Breastfeeding http://www.friendsofbreastfeeding.ie/wp/support-2/

National HSE Breastfeeding support https://www2.hse.ie/babies-and-toddlers/breastfeeding/

Postpartum mental health care: https://nurturehealth.ie/

 Remember to keep adhering to HSE guidelines regarding protecting yourself and your family https://www2.hse.ie/conditions/coronavirus/protect-yourself.html, try to get outside for some fresh air during the day, get as much rest as possible and lots of skin to skin contact with your baby will help you bond and keep baby feeling safe and secure in these worrying times. Hopefully over the next few weeks things will get back to some normality and we will all stay safe and well in the meantime. Best wishes to you and your families from all at DoulaCare Ireland 

With thanks to one of our doulas Maura for writing this blog. You can read all about the support Maura offers on this link https://www.doulacare.ie/maura-oshea

Moved over to main website blog:Why I donated my placenta to search dogs

Why I donated my placenta to search and rescue dogs

What happens to your placenta after you give birth? Well women in Ireland have a number of options

1. Let the hospital dispose of it

2. Bring it home and plant a tree over it in your garden

3. Get it encapsulated or consume it raw (in a smoothie)

4. Pop it in your freezer to keep

5. Donate it to search and rescue dogs

On both of my sons births I never put much thought into what happened to my placentas. I don’t remember seeing them or being asked. They simply were mentioned and then disappeared. 

So with my last pregnancy I put thought into what I would do with my placenta this time. I didn’t want to just dump my placenta. It had been this amazing source of life to my daughter for 9 months. My body had created this perfectly tailored organ to help my baby grow. It provided oxygen and nutrients to my baby and removed waste products from my baby blood. I am fascinated by placentas, can you tell? LOL 

I contemplated a nice cherry blossom tree in the garden to symbolise my daughters birth. I did think it would be lovely.

For me personally, I did not want to consume my placenta. Being a doula and antenatal educator everything I present to my clients is evidence based. I spend a huge amount of time researching topics relevant to pregnancy, birth and early parenting.  With placenta consumption (either via capsules or raw) there is no concrete evidence. There are lots of antidotal findings, both for and against but until there is a scientific study done I was not willing to take the risk. 

So for me I felt it was fitting for my placenta to be useful and to go to a good cause. I donated my placenta to Irish Search Dogs.They use the placenta tissue to train their dogs in finding human remains. While this is a heart breaking situation - my hope is that by donating my placenta, it is helping a family to find a loved one and to lay them to rest. 

My husband is a Garda and we both know only too well the horrible situations many families find themselves in. When a loved one dies, giving that family closure can mean so much. Irish Search Dogs give this to those whose loved ones are missing. It is an unbelievable service provided. While this is not a situation people like to think about much, it is invaluable to many many families nationwide. 

When I decided to donate my placenta I spoke with the chairman Glen who was absolutely lovely. He was so kind and understanding and made the process so easy. He put zero pressure on me and simply said if I decided to go ahead and remembered on the day that would be brilliant. My husband brought my placenta home from the hospital and popped it into our freezer (in the bag the hospital had provided) I then contacted Irish Search Dogs and they even had one of their volunteers collect it from my home! Making it totally hassle free!

So if you are unsure what you would like to do with your placenta, please do consider donating it. During your pregnancy it was a gift of life and afterwards it can continue to give so much to families by helping to train these amazing dogs!

If you would like to learn more about Irish Search Dogs their website is

 http://irishsearchdogs.com/About.html

Glens email is glen@irishsearchdogs.com (A total gentleman)

Jen x

Have you heard of Naming Ceremony?

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A Naming Ceremony is a celebration of family and life. This is a great way to bring your family and friends together. The Ceremony is written in conjunction with the parents and a Celebrant to create a personalised and meaningful occasion. It usually includes bestowing a name on your child and declarations of promises and commitments from the parents and guide parents and other important people in the child’s life.

Naming Ceremonies can be held in the home or at a venue of your choosing but not in a Church. They are also not officiated by a Priest but by a Celebrant. Although a Naming Ceremony is secular in its origin, it is entirely the personal choice of the parents as to whether any religious content, from any faith, is included. Having contact with your Celebrant is the best approach as you can use their experience to make the ceremony exactly how you have envisaged it. The Ceremony can be either relaxed or formal. You have total freedom to create a memorable experience for your family and loved ones.

Some parents like their other children in the ceremony. Their siblings can choose to write and say a reading or poem, or perhaps make their own commitments. They may want to make a promise to help look after their new sibling. As a family you may like to light unity candles or have a sand blending ceremony, the action of doing something like this as a family can be significant in bringing you all together.  

In the ceremony you can incorporate readings, poetry and music. The most important part is choosing the aspects that are special to you and your family.  Parents will declare their hopes and wishes for their child’s future and will share this experience with family and friends.  

Naming Ceremonies will include the bestowing of a name - this is where the child is named, perhaps giving the reasons for choosing that name, maybe it was an ancestral name or perhaps had an interesting history. This marks the very first time that a child is introduced to their community using their new given name

 Guide parents are chosen to make commitments to support and guide the child as they grow and they will make themselves available should the child ever need them for advice, care, guidance or help, this is similar to the role of God Parents.  Promises may be made by Guide parents, they can either answer questions asked by the celebrant during the ceremony, or they can prepare their own promises to your child - in doing this their role becomes even more personal to them. You will be surrounding your child with loving role models to nurture them and have a positive impact on their life. 

The duration of a Ceremony will depend on how many Ceremony enhancements, readings/poems you include, a Naming Ceremony usually last around 25-30 minutes

Some parents like to personalise the ceremony to include symbolic elements such as the lighting of unity candles, a sand blending ceremony, hand and foot prints as a keepsake or the planting of a tree (if the ceremony is being held in your home).

Naming ceremonies are not legally binding and do not have any legal status, although you may be presented with a record of the ceremony as a token of the day.

Naming ceremonies can also be tailored to welcome adoptive children and step-children into a new, extended family or relationship.

My name is Carol Colman and I am an accredited Celebrant with the Irish Institute of Celebrants. I am based in Dublin and I also cover surrounding counties.  I can be contacted through my website www.loveisallyouneed.ie ,on Facebook Carol Colman Family Celebrant or by email at carolcolman57@gmail.com.  I as a Celebrant will offer home consultation, alternatively you can choose to have contact through online platforms such as Skype, WhatsApp or other video call software, but if it’s possible, I would recommend meeting  person – but as a parent myself I fully understand how precious your time is with a new arrival or toddler.   

Throughout the process, I will discuss the options to personalise the ceremony and will get to know you so I can tailor a ceremony to suit your family needs.

I am an expert in creating bespoke celebrations that people love. I can help you by guiding you through what can be involved in the ceremony and also giving some ideas you may not yet have considered.

My Special Offer to anyone who quotes DoulaCare in their contact email to me is that they will receive their Ceremony for €200 (Usual price €250)

Here is some inspiration for things you may want to include:

• A book can be available at the celebration which guests are asked to sign or write a message and good wishes for the future for the child and the family.

• Guests could be asked to bring something small for the child, such as a letter or a flower, which is collected at the start of the ceremony.

• The celebrant can ask if any guests would like to say anything about the child after the ceremony.

• A video can be made with guests saying a message for your child at some point in the future.

• Creating a naming certificate with the details of the day and name which can be kept after the day for the child.

• Planting a tree either as part of the ceremony or after at your home. This can symbolise growing as family.

• A Sand Blending ritual can be a nice addition if there are other children in the family

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Postnatal Depression, when love doesn’t come as a thunderbolt.

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Postnatal Depression, when love doesn’t come as a thunderbolt.

I was 21, and diagnosed with Poly Cystic Ovarian Syndrome (PCOS), on a hot June day, in the consultants room, in a Cork hospital. One minute I was worrying about my parent's car being clamped, and the next minute I was being told,  if I was ever going to have kids, do it now in my early 20s. He closed the folder and stood up, as I sank into the chair. Fast forward to 23, going out with my husband, and about four weeks into the relationship, the clock now ticking so loudly, I sit him down and tell him. In September 2011, my daughter was born. Five years after my PCOS diagnosis. A greyness descended, initial happiness replaced with fears, thoughts, overwhelming feelings. My brain telling me that I’m not good enough for her. My husband was beaming, but my heart was breaking, because, after five years of hoping, wishing, endless sticks to wee on, I didn’t get that thunderbolt. I was in shock. 

I stayed in the hospital for four days, because I didn’t want to go home until I felt ‘right’ . That thunderbolt didn’t come. Over the following days and weeks, I lied to friends and family who were enamoured by her. I was staying awake all night, afraid, and dreading the moment she would need me again. Would she be better with someone else as her mammy? I envied my husband's love for her. I envied how happy he was. I loved her, but felt that I wasn’t enough for her. What if she didn’t like me? Friends kept telling me how lucky we were to have a happy, healthy baby. I didn’t feel lucky, I felt guilty, ashamed that I wasn’t enjoying the baby I had longed for. I was lucky to find a breastfeeding support group,  that allowed me to cry, talk openly, and not be judged. It became my lifeline. I found Kathy Kendall-Tackett's book, The Hidden Feelings of Motherhood, and it was eye opening, and reassuring. Dr Andrew Mayers from Bournemouth University, has done some interesting research about partners developing postpartum depression too.

I had heard some myths about PND , and medication, and I had fears about asking for help. What if they take her off me? What if, what if, what if? I became numb, and comfortable in my numbness. I hit rock bottom in 2016, when my neighbour passed away suddenly. A few days later, at my doctor's for something else, I broke down. He gave me some options, and I chose a referral for counselling. It was amazing. A weight lifted. The shame and guilt could be put down. I could breathe. 

I now work as a postpartum Doula, with Doula Care Ireland. One client described me as “a wonderful calm presence amidst the chaos" .I am not a health care professional. I am not there to tell you what to do. I give you the information,  and allow you to make an informed choice that works for you and your family. There is no one magic cure for PND, but , with calm, clear, informative support you can begin your journey out of the greyness. I am continuously working on being the best version of myself, and it is a continuous process. Sometimes I see glimpses of how I felt, in my clients, and it reminds me that the process of being mentally well, is something we need to keep working on.

Written by one of our doulas Dee Burke. You can fins out more about Dee and the support she offers here https://www.doulacare.ie/dee-burke-1/

If you or someone you know is suffering with a postpartum mood disorder these resources may help

https://www.nurturecharity.org

http://www.pnd.ie

https://www.cuidiu.ie/httpwwwcuidiucomsupports_parenthood_postnatal

https://www.hse.ie/eng/services/list/4/mentalhealth/mother-and-infant-health/#Finally,%20support%20services%20for%20those%20with%20Poatnatal%20Depression

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Moved over to main website blog:Adjusting to life with a toddler and a newborn

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Adjusting to life in the early days and weeks.

It is important to acknowledge that it will be hard at times, but it won't be impossible. It is all an adjustment but the love you will feel will make everything worthwhile. Of course as your Postpartum Doula I will assist you with adjustment and daily tasks. Here are my top tips on how to set yourself up for success and make each day easier.

• Cook extra portions of freezer friendly meals (like bolognaise/shepherds pie/fish bake etc) while you are pregnant or if baby is here then at the weekends so you've a good supply of nutritious food to see your family through week ahead. This is also something family and friends could do to help out.

• Shop online for now if a grocery shop seems unimaginable. 

• Buy preprepared fruit and veg as handy snacks to grab on the go.

• Don't be too proud to accept offers of help and don't be afraid to suggest chores (unload the dishwasher, hoover the stairs, clean the bathroom etc)

• Lower your expectations of how the house will look during the first few months. You've got a lot on your plate, and it doesn't really matter if the dusting doesn't get done or you have to wear un-ironed clothes for a few days, or years even.

• As soon as you can, try to get out for at least a short walk every day it's amazing what a boost it is to get out of doors. If that seems too epic right now, sit in the garden and play with your toddler.

• Take all offers of taking your toddler out for a while (once your toddler is happy of course!) Granny wants to take her out to the playground? Great, don’t feel guilty and try to go too - grab a nap with baby while you can :)

• Make your toddler aware from the very start that the baby is interested in her, is watching her and loves her. Say things like, "She's following your game with her eyes" and "She's very interested in what you're doing".

• Involve your toddler in games with the baby from the earliest days, and always tell your toddler how much you value her help with tasks such as handing you a nappy for the baby.

• Have a ‘special feeding box’ Fill the box with little toys and books, colours or activities for your toddler. This box only comes out while you are feeding the baby and is your toddlers special treat.

• Babywear. Using a sling gives you the ability to meet your newborns needs (to be warm, safe and close to you) while still playing, reading with or just spending quality time with your toddler. I would recommend attending a sling meet or get a sling consultant to your home to find the right sling for you.

• Take photos, because while the days seem endless right now, the weeks and months will fly past and you will appreciate the memories ☺

• Be gentle with yourself. No one is perfect. This is all learning on the job, take each day as it comes and remember you are doing your best and that is all anyone can do!

Enjoy the madness! Doula Jen x

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Things are not always as they seem on Social Media!

Things Are not Always as They Seem on Social

Media!

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Things aren’t always as they seem!

Social media like Facebook portrays an image of happiness and beauty. Everyone full of smiles, surrounded by friends and family, women with perfect make up, children looking sweet, even their house looks clean and decorated so beautifully in the background!

I have sat with so many parents who feel inferior and genuinely upset when they compare their life to their Facebook or Instagram friends (some of whom they may never have actually met in real life!) 

Well guess what? No one has a perfect life. Who do you know that told you about their toddler having a massive melt down on the floor of the super market?  It’s happened to us all! Now ask yourself this, have you ever seen them post a photo of said event? The probable answer is of course no. They may even have got through that hiccup in their day and gone on to post a video that evening of their little one singing a sing, full of smiles. This often leaves us all thinking “Look there is Sally’s little girl singing, she is so sweet. Why are my kids such terrors? I can’t even bring them to the shops to get milk and bread without a melt down!”

Social media is where people document their happy moments. It is well thought out before anyone posts a photo. They will find the clean corner of their house, hold the camera to its most flattering angle, nudge their partner to smile or do silly faces to coax a smile from their little ones. It is where we can look back and say “That was a brilliant day” or “Look how much my baby has grown since then!”

I encourage you all to enjoy social media, like Facebook and take inspiration from others. See another twin Mum getting out to a play group? Never thought you could? Maybe that was the photo you needed to see to give it a go ☺ 

Social media is a great way to stay connected to people, get peer support and find out about local resources. Remember to take off the rose tinted glasses and see behind the staged scenes of family photos. Reality is that there was probably shouting or bribery (or both) to get everyone in and smiling. If we capture that moment we can feel proud posting it, banking that moment in time for the future. 

So your life isn’t perfect, your kids are a pain in the backside most of the time, your house is a mess and your partner is a nightmare. Whose isn’t? Feel comfort in knowing we are all in the same boat ☺ Reach out to friends to chat. Go to peer support groups. Have a moan, then have a cup of tea and a biscuit, take a deep breath and enjoy the rest of your day.

Because even if your life isn’t perfect, you will never have this moment again. Your little ones will never be at this stage again. Sometimes the days can feel endless but the weeks disappear so quickly so savour every precious moment and breath through the hard ones.

Doula Jen xx

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Expressing Love

A Poem for all Pumping Mothers.

Hmmmm hmmmm goes the pump through the night,

Reminding myself it will all be alright.

The chafing and blisters won't last,

Counting each drop as they fall becomes a thing of the past,

Watching my baby sleep soundly,

The sound of the pump rings out all around me.

Hmmmm hmmmm goes the pump through the night,

Reminding myself it will all be alright.

I'm giving my baby every drop that I can,

Even though things are not quite how I planned.

I'm pouring my love into every single drop,

Telling myself "keep going, don't stop"

Hmmmm hmmmm goes the pump through the night,

Reminding myself it will all be alright,

Skin to skin, and slings,

Are our new bonding things.

As I nourish her tummy,

With my tailor made milk (that's so yummy!)

As drops turn to sprays,

And hours into days,

As mls turn to ounces,

And days into weeks,

The lowest moments fade and we experience more peaks.

Hmmmm hmmmm goes the pump through the night,

Reminding myself it will all be alright,

The grief begins to pass,

As we find our own way.

The pumping becomes part of life

As we grow day by day.

A poem by Jen Crawford. Exclusively pumping for her daughter Kayla who was born with a complete cleft palette and Pierre Robin Sequence.

Moved over to main website blog:Care and Recovery After a Caesarean Birth.

Care and Recovery After a Caesarean Birth.

You have a brand-new baby — and you also just had surgery. Whether you knew you would have a caesarean birth or not, dealing with both at the same time can be rough. Here are some helpful tips to get your recovery and parenting journey off to a great start. 

Keep on top of the pain medication!

Expect the caesarean incision to hurt for a while. The medicine used in the epidural/spinal ease pain immediately after birth. After they wear off, you’ll be given oral anti-inflammatory medication or suppositories. There are options for these medications that don’t interfere with breastfeeding, so take them. If you can keep pain at bay, it’s unlikely to get out of control. But if you let it go, it’ll hit you like a ton of bricks. It is important to mind yourself during your recovery.

Many new mothers get tummy cramps after birth. These are called "after pains" and are similar to early contractions. They are your uterus’s way of shrinking to its original size. Sometimes having that incision will make it more intense for you. Also know that breastfeeding can trigger those cramps and make them feel a little more intense. As crazy as it sounds, this is actually a positive thing! Breastfeeding releases oxytocin which will assist your uterus to shrink back down the way nature intended. Talk to your doctor or a lactation consultant if you’re having severe pain or other problems breastfeeding. Or remember your doula is always at the other end of the phone.

Move at your own pace!

You probably won't feel up to walking the room rocking your new baby straight away after birth, but you should be able to get out of bed and walk around within a day. You obviously have to wait for the epidural or spinal medications to wear off fully but you also may need extra time to regain your energy. Once the catheter is removed (it emptied your bladder so it wouldn’t be damaged during delivery), you’ll be able to get out of bed. Take those first few days at your own pace (often similar to a 100 year old tortoise).

Moving around allows normal body functions to get back to normal, as well as decreasing the chance of complications from your surgery. For example, walking even small amounts helps to avoid constipation. It can also lower the risk factor of forming a blood clot. Plus as hard as it seems, you will feel better if you go and brush your teeth or take a shower. Slowly and with help!

Of course, you’re not expected to get up and go for a 10k run anytime soon but it is recommended to gradually increase the amount of activity you do from around two weeks postpartum. That can mean starting by walking around the garden and gradually going longer distances and becoming more active. Increase the intensity around six weeks postpartum. By that time, you will be due your 6 week check with your GP, who will let you know if you are ok to drive and answer any questions you have. Take it at your own pace, follow what your body is telling you.

Get help lifting baby

I know - All you want to do is lift that gorgeous baby up and cuddle her, but you’re always better to ask for help. It could be painful or difficult shortly after surgery. This is normal, and pain medication, as well as a hand from your partner, doula or a nurse, will help. Lifting a baby out of the crib may be a challenge, but sitting and holding a baby in your bed or a chair and nursing isn’t. So go ahead and breastfeed your baby, but ask for assistance from the nurses or your partner during your hospital stay.

Eat lots of fibre

Constipation can be an issue for women after caesarean birth. Gas also gets backed up. This can be uncomfortable in the obvious ways but in surprising ones as well, like shoulder pain. If your bowels are distended, they can irritate the diaphragm, and that can be a referred pain that goes to the shoulders.

Don't be shy,  speak to your care provider about laxatives and anti-gas meds if required. Remember to eat fiber-rich foods like fruits and vegetables, drink lots of water, and move around as much as possible. And don’t be shy — let that gas pass.

Care for your incision

In the shower, let the water run on the wound (don’t scrub). Try not to use soap on the area. Once you are done you can pat it dry. If your skin folds over the incision, put a cloth pad on it to keep it from getting sweaty. Your nurse will check it regularly to make sure everything is healing well and may put a dressing on for protection.

Look out for signs of infection, if any develop call your care provider:

• High Tempature

• Skin around the incision turns red

• Oozing green or pus-coloured liquid

• Incision becomes hard or painful

Self care is vital!

So now you are a mam with a round-the-clock new responsibility. It can be easy to get distracted with your adorable new baby and push your body too far. It is important for both you and baby that you recover quickly. You can help speed recovery by eating a balanced diet, getting as much rest as you can and start gentle exercising once you get the go-ahead from your doctor. Don’t be afraid to ask for help so you can get some extra sleep, take a long shower or eat a full meal. (see my blog on ‘Self Care’) 

I wish you the best of luck with your birth experience.

Doula Jen x

Jen Crawford,

CO-OWNER DoulaCare Ireland

www.doulacare.ie

What's the story with Kaylas Cleft?

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Anyone following my journey over the past year will know Kayla was born with a cleft palate (but not lip) Many people don’t quite understand what that means, and to be honest I struggled a bit at the beginning too! So I thought a blog would help :)

There are many different types of clefts and no two are the same. A baby can be born with a cleft lip, a cleft palate or both a cleft lip and cleft palate. Essentially what a cleft is, is a hole or gap in the area. 

The following stats are taken from (http://www.cleft.ie/?page_id=25) The incidence of cleft lip and/or palate in Ireland is between 1 in 700 and 1 in 1,000 births. Incidence of cleft palate occuring alone is about 1 in 2000 births. More than 70% of babies with cleft lip also have cleft palate. 

Parents who have a child born with a cleft, have a 5% chance of the next born also having a cleft (so a 1 in 20 chance). If a second child is born with a cleft, the likelihood increases further for any subsequent child. 

The chances of a parent who was born with a cleft having a cleft baby is approximately 7 in 100. So Kayla will have roughly a 7% chance of having a baby with a cleft (of course if she chooses to be a parent but we would love lots of grandchildren!). 

Types of Cleft Lip

• Forme fruste unilateral cleft lip
  A subtle cleft on one side of the upper lip, which may appear as a small indentation.

• Incomplete unilateral cleft lip
  A cleft on one side of the upper lip, which does not extend into the nose.

• Complete unilateral cleft lip
  A cleft on one side of the upper lip, which extends into the nose.

• Incomplete bilateral cleft lip
  Clefts on both sides of the upper lip, not extending to the nose.

• Complete bilateral cleft lip
  Clefts on both sides of the upper lip, extending into the nose.

Types of Cleft Palate

• Incomplete cleft palate
  A cleft in the back of the mouth in the soft palate.

• Complete cleft palate
  A cleft affecting the hard and soft parts of the palate. The mouth and nose cavities are exposed to each other.

• Submucous cleft palate
  A cleft involving the hard and/or soft palate, covered by the mucous membrane lining the roof of the mouth. May be difficult to visualize.

Kayla is linked in with the cleft team in Temple Street. They have been amazing. Big shout out to Jane the cleft nurse specialist who takes families under her wing and walks the journey with them. She gives us so much time to ask any questions we may have and checks in regularly to see how Kayla is doing.

In Ireland, the cleft teams grade the palate or lip cleft from 0-3. 0 being very mild and 3 the most sever. Kayla has a grade 3 cleft palate. She has a complete cleft palate, but instead of just being a gap or a hole Kayla is missing all of her palate (hard and soft)

Kayla also has a condition called Pierre Robin sequence (or syndrome) PRS for short. This is a condition in which babies are born with a smaller than normal lower jaw, a tongue that is small and bunched which often falls back in the throat, and difficulty breathing. It is present at birth but not always detected in pregnancy ultrasounds. Most babies with PRS have a U shaped cleft palate like Kayla. Again the team will grade PRS 0-3 and Kayla scored a 0, as luckily she does not have many issues with her airways. Kayla does well once she is on her side or raised. Another positive is that nature gave her a helping hand with a tight posterior and anterior tongue tie to hold her tongue in place, so her tongue does not flop back to block her airways (who would have thought it? A helpful tongue tie!!)

Other common issues in babies/children with PRS are problems with their eyes (Stickler Syndrome), problems with their inner ears and dental issues. Kayla will be under different teams for each and so far they have been wonderful.

Kayla will have her first surgery to create a soft palate when she is around 9 months. This will hopefully help with her speech development. She will most likely be 3 years old before her palate is completely closed but for now it seems the only long term issue she will have is a speech delay – which she will catch up on by the time she is 10 years or so. So while her first few years of life will be hard, with surgeries and hospital appointments it is something that won’t hold her back and she can put behind her!

I hope this blog helps to explain things a little? Please feel free to ask questions :)

Again thank you to everyone for the love and support since Kayla was born xx

If you or someone you know has a baby with a cleft or PRS these are helpful resources:

Websites:

http://www.cleft.ie/

https://www.clapa.com/

www.cleftlipandpalatebreastfeeding.com

https://www.breastfeeding.ie/Resources/Publications/ The booklet I co created "Breastfeeding and Expressing for your preterm or sick baby" has lots of information on getting off to a good start, maintaining your milk supply, storing milk, skin to skin and more. It is available free to download or order. All Irish maternity units should have copies also. 

The Australian Breastfeeding Association (ABA) has two booklets (both e-booklet -released during 2017 and hard copy)  The cleft breastfeeding booklet: https://goo.gl/ZnoFqc has information about breastfeeding - and expressed breast milk feeding, lactation aids, type of feeding methods including - cup/spoon/supply lines/ bottles/teats. As well as some of the experiences surrounding feeding from families.  The second booklet is all about expressing and storing breastmilk: https://goo.gl/ft7gDp. 

Facebook pages: 

cleft lip & palate association of ireland

Cleft Lip And Palate Association

Cleft Lip and Palate Breastfeeding Support Group

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